دانلود کتاب CyberGenetics: Health genetics and new media

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Cover
Half Title
Title Page
Copyright Page
Dedication
Table of Contents
Acknowledgements
List of abbreviations and acronyms
1 Introduction: CyberGenetics
Figure 1.1: Direct-to-consumer genetic testing
Box 1.1: Autobiology of a direct-to-consumer genetic testing user
Brief history of direct-to-consumer genetic testing
Brief history of the internet and health online
Intersecting determinisms: when genetic testing goes online
New spaces for health-e relations?
Changing relations of trust: in bodies, expertise, science and technology
Overview of book
Apple falls from the tree
References
2 Users
Patients-in-waiting
Celebrity users
Non-celebrity users
Potential users and non-users
Conclusion
References
3 Professionals
Genetic counselling online: co-production of users and technologies
Representations of genetic counselling by direct-to-consumer genetic testing companies
Models of genetic counselling provision
Genetic counselling roles
New roles for genetic counsellors
Conclusion
References
4 Participation
The participatory turn?
Novel methods: the ‘research-y’ part of 23andMe
23andMe’s ‘participatory culture’
Sharing gifts under the genetic family tree
Reciprocal ties
Spitting for free
Conclusion
References
5 Controversy
Schizophrenia genetics
Controversy goes online
Selling genetic tests online for schizophrenia
Controversy in action: citation and production of knowledge
Conclusion
References
6 Conclusion: CyberGenetic futures
Preventive measures
Letters from the lake
GenULuv announces entry to stock market
Online genetic testing: an archaeological assessment
References
Appendix A: New media, new genetics, new methods
Box A.1: Seven principles for doing research about emergent techno-scientific phenomena
Methodological choices made in preparation of this book
Finding material online: ethics of using self-reported data
Ontological issues of finding participants and defining ‘users’
The internet is not the world: epistemological considerations of online research
Future directions
References
Appendix B: Direct-to-consumer genetic testing websites
Direct-to-consumer psychiatric-only genetic testing sites
General direct-to-consumer genetic testing sites with tests related to psychiatric conditions
Direct-to-consumer genetic testing sites not offering tests for psychiatric conditions
Genetic testing websites where it is not clear if it is direct-to-consumeror which diseases they test for
Reference
Index