دانلود کتاب Parental Rights, Best Interests and Significant Harms: Medical Decision-Making on Behalf of Children Post-Great Ormond Street Hospital v Gard

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Foreword by Victoria Butler-Cole QC\nContents\nList of Contributors\nIntroduction\n1. Setting the Scene – Supporting and Informing Shared Decision-Makingat the Bedside Avoiding and De-escalating Conflict between Clinicians and Families\n 1. Introduction\n 2. Setting the Scene from the Parents’ Perspective\n 3. National Trends in Paediatric Intensive Careand Long-Term Ventilation\n 4. National Guidance\n 5. Advance Care Planning\n 6. Identifying the Early Signs of Conflict\n 7. De-escalation Techniques\n 8. Conclusion\n2. Evaluating \'Best Interests\' as a Threshold for Judicial Intervention in Medical Decision-Making on Behalf of Children\n 1. Introduction\n 2. Orthodoxy\n 3. The Challenge\n 4. Objections to a Harm Threshold\n 5. In Favour of a Harm Threshold\n 6. Conclusion\n3. Parental Decisions and Court Jurisdiction: Best Interests or Significant Harm?\n 1. \'Question of Principle of the Utmost Importance\'\n 2. The Nature and Limits of Parental Responsibility\n 3. Welfare and Parental Disputes\n 4. Parenting \'In the Gap\' Jurisdiction and the Children Act\n 5. The Inherent Jurisdiction\n 6. Children\'s Welfare and Valuing Parents\n 7. Conclusion\n4. The Legal Basis of the Court’s\rJurisdiction to Authorise Medical\rTreatment of Children\n 1. The Inherent Jurisdiction\n 2. The Children Act\n 3. The Scope of the Children Act in Medical Cases\n 4. The Need for Declarations\n 5. Conclusions\n5. In Defence of a Conditional Harm Threshold Test for Paediatric Decision-Making\n 1. Harm or Best Interests in the Case of Charlie Gard?\n 2. Definitions, Distinction\n 3. Three Ethical Arguments in Defence of the Harm Threshold\n 4. Counterarguments to the Harm Threshold\n 5. The Conditional Harm Threshold\n 6. Conclusions\n6. The Harm Threshold: A View from the Clinic\n 1. Introduction\n 2. The Harm Threshold as a Current Issue\n 3. The Harm Threshold in Bioethics\n 4. Conclusion\n Appendix\n7. Beyond Best Interests: A Question of Professional Conscience?\n 1. Introduction\n 2. Professional Judgement and Professional Conscience\n 3. Professional Conscience in Children\"s Medical Treatment\n 4. Ending Life-Sustaining Medical Treatment: From Professional Judgement to Professional Conscience?\n 5. Professional Conscience in the Care of Charlie Gard\n 6. Why is Consideration of Professional Conscience Significant in Children\'s Medical Treatment Cases?\n8. Preserving the Therapeutic Alliance: Court Intervention and Experimental Treatment Requests\n 1. Introduction\n 2. Three Interconnected Variations of Faith and their Role in Parental Decision-Making\n 3. The Role of the Court: Providing Clarity and Assuming Decision-Making Responsibility\n 4. Concluding Thoughts\n9. Futility\n 1. Introduction\n 2. The Value of \'Futility\'\n 3. Differing Conceptions of Futility\n 4. Conclusions\n10. Vulnerability and Medical Decisions Concerning Children\n 1. Introduction\n 2. Universal Vulnerability Theory\n 3. Vulnerably of Alfie and Charlie\n 4. Vulnerability of Parents\n 5. Vulnerability of Staff\n 6. Vulnerability of Judges\n 7. Conclusion\n11. Resolving Disagreements about the Care of Critically Ill Children: Evaluating Existing Processes and Setting the Research Agenda\n 1. Introduction\n 2. Critically Ill Infants in (and Beyond) the Courts\n 3. Discussions between Families and Clinicians\n 4. Second Opinion Experts\n 5. Clinical Ethics Consultation\n 6. Mediation\n 7. Courts\n 8. Conclusion\nIndex