دانلود کتاب The Official Parent's Sourcebook on Neurofibromatoses: A Revised and Updated Directory for the Internet Age

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This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to neurofibromatoses, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on neurofibromatoses. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Neurofibromatoses: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Neurofibromatoses; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Neurofibromatoses; Chapter 5. Books on Neurofibromatoses; Chapter 6. Multimedia on Neurofibromatoses; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; NEUROFIBROMATOSES GLOSSARY; INDEX. Related topics include: Bilateral acoustic neurofibromatosis, NF1 is also called von Reckling-hausen disease, NF2 is also called bilateral acoustic neurofibromatosis, Type 2 neurofibromatosis, Von Recklinghausen Disease, Von Recklinghausen neurofibromatosis, vonRecklinghausen neurofibromatosis.