توضیحاتی در مورد کتاب :
زندگی کودکان معلول اغلب از طریق مفاهیم پزشکی ناتوانی به جای مفاهیم کودکی مورد بحث قرار گرفته است. درک غربی از دوران کودکی، کودکان ناتوان را در برابر «هنجارهای» رشد کودک تعریف کرده است و منطقی را برای تأمین رفاه و آموزش تفکیک شده یا «ویژه» ارائه کرده است. در مقابل، مطالعات دوران کودکی کودکان معلول با این دیدگاه آغاز می شود که مطالعات مربوط به اختلالات کودکان، مطالعه دوران کودکی آنها نیست. مطالعات دوران کودکی کودکان معلول مستلزم شیوههای تحقیقاتی اخلاقی است که کودکان و جوانان معلول را خارج از سایه "هنجارهای" درک شده در مرکز تحقیقات قرار دهد.
کتاب Palgrave از مطالعات کودکی معلولان < /i>برای دانشجویان و دانش پژوهان در طیف وسیعی از رشته ها و همچنین شاغلین در زمینه بهداشت، آموزش، مددکاری اجتماعی و کار جوانان مورد علاقه خواهد بود.
فهرست مطالب :
Front Matter ....Pages i-xxiv
Front Matter ....Pages 1-3
The Texting Project (Blair Manns, Sarah Manns, (son and mother))....Pages 5-16
The Tree of Participation: Our Thoughts About Growing a Culture of Participation Between Young People, Parents and Health Team Staff (Jennifer McElwee, David Cox, Tony Cox, Rosemary Holland, Thomas Holland, Theresa Mason et al.)....Pages 17-27
“What Can I Say?” (Wendy Merchant, Jamie Merchant)....Pages 29-39
The Heaviest Burdens and Life’s Most Intense Fulfilment: A Retrospective and Re-understanding of My Experiences with Childhood Liver Disease and Transplantation (Sophie Savage)....Pages 41-56
My Sister, My World: From Second Mum to Nurse (Rebecca Whitehead)....Pages 57-62
Being a Disabled Woman and Mum: My Journey from Childhood (Jo Skitteral)....Pages 63-70
Going ‘Off Grid’: A Mother’s Account of Refusing Disability (Kim Davies)....Pages 71-79
Front Matter ....Pages 81-83
The Social Relational Model of Deaf Childhood in Action (Kristin Snoddon, Kathryn Underwood)....Pages 85-100
‘The Embodiment of Disabled Children and Young People’s Voices About Participating in Recreational Activities’: Shared Perspectives (Dawn Pickering)....Pages 101-123
Making Space for the Embodied Participation of Young Disabled Children in a Children’s Centre in England (Heloise Maconochie)....Pages 125-139
Interrogating the ‘Normal’ in the ‘Inclusive’ Early Childhood Classroom: Silence, Taboo and the ‘Elephant in the Room’ (Karen Watson)....Pages 141-157
The Kids Are Alright: They Have Been Included for Years (Ben Whitburn)....Pages 159-175
Expressive Eyebrows and Beautiful Bubbles: Playfulness and Children with Profound Impairments (Debby Watson, Alison Jones, Helen Potter)....Pages 177-190
My Friends and Me: Friendship and Identity Following Acquired Brain Injury in Young People (Sandra Dowling, Roy McConkey, Marlene Sinclair)....Pages 191-211
Thinking and Doing Consent and Advocacy in Disabled Children’s Childhood Studies Research (Jill Pluquailec)....Pages 213-228
Front Matter ....Pages 229-230
The ‘Disability Commons’: Re-thinking Mothering Through Disability (Katherine Runswick-Cole, Dan Goodley)....Pages 231-246
Intersectionality Theory in Research with the Fathers of Children with the Label of Autism (Joanne Heeney)....Pages 247-262
The Construction of Life Trajectories: Reflections, Research and Resolutions for Young People with Behavioural Disabilities (Tania Watson)....Pages 263-280
Personalisation Policy and Parents: The Formalisation of Family Care for Adult Children with Learning Disabilities in England (Barbara Coles)....Pages 281-296
Front Matter ....Pages 297-298
Anonymity, Confidentiality and Informed Consent: Exploring Ethical Quandaries and Dilemmas in Research with and About Disabled Children’s Childhoods (Liz Thackray)....Pages 299-313
Supporting Families in Raising Disabled Children to Enhance African Child Development (Judith McKenzie, Tsitsi Chataika)....Pages 315-332
Normalcy, Intersectionality and Ableism: Teaching About and Around ‘Inclusion’ to Future Educators (Jen Slater, Elizabeth L. Chapman (Liz))....Pages 333-349
“Just Sumaira: Not Her, Them or It” (Sumaira Khalid Naseem)....Pages 351-359
Front Matter ....Pages 361-363
What’s Wrong with ‘Special’? Thinking Differently in New Zealand Teacher Education About Disabled Children and Their Lives (Gill Rutherford, Jude MacArthur)....Pages 365-388
A Diversity of Childhoods: Considering the Looked After Childhood (Luke Jones, Kirsty Liddiard)....Pages 389-408
A Relational Understanding of Language Impairment: Children’s Experiences in the Context of Their Social Worlds (Helen Hambly)....Pages 409-423
Resilience in the Lives of Disabled Children: A Many Splendoured Thing (Katherine Runswick-Cole, Dan Goodley, Rebecca Lawthom)....Pages 425-442
Growing Up Disabled: Impairment, Familial Relationships and Identity (Brian Watermeyer)....Pages 443-459
Autistic Development, Trauma and Personhood: Beyond the Frame of the Neoliberal Individual (Damian Milton)....Pages 461-476
Front Matter ....Pages 477-479
Making Policy for Whom? The Significance of the ‘Psychoanalytic Medical Humanities’ for Policy and Practice That Affects the Lives of Disabled Children (Harriet Cooper)....Pages 481-499
Disabled Children’s Childhood Studies and Leadership as Experts by Experience’ Leadership: Learning Activism in Health and Social Care Education (Tillie Curran, Ruth Sayers, Barry Percy-Smith)....Pages 501-521
Being a Speech and Language Therapist: Between Support and Oppression (Anat Greenstein)....Pages 523-536
“You Say… I Hear…”: Epistemic Gaps in Practitioner-Parent/Carer Talk (Nick Hodge, Katherine Runswick-Cole)....Pages 537-555
Disabled Children in Out-of-Home Care: Issues and Challenges for Practice (Berni Kelly, Sandra Dowling, Karen Winter)....Pages 557-573
Easy Targets: Seen and Not Heard—The Silencing and Invisibility of Disabled Children and Parents in Post-Reform Aotearoa New Zealand (Rod Wills)....Pages 575-594
Family Voices in Teacher Education (Peggy Gallagher, Cheryl Rhodes, Karen Young Lewis)....Pages 595-616
Rights Not Needs: Changing the Legal Model for Special Educational Needs (SEN) (Debbie Sayers)....Pages 617-642
Back Matter ....Pages 643-661
توضیحاتی در مورد کتاب به زبان اصلی :
Disabled children’s lives have often been discussed through medical concepts of disability rather than concepts of childhood. Western understandings of childhood have defined disabled children against child development ‘norms’ and have provided the rationale for segregated or ‘special’ welfare and education provision. In contrast, disabled children’s childhood studies begins with the view that studies of children’s impairment are not studies of their childhoods. Disabled children’s childhood studies demands ethical research practices that position disabled children and young people at the centre of the inquiry outside of the shadow of perceived ‘norms’.
The Palgrave Handbook of Disabled Children’s Childhood Studies will be of interest to students and scholars across a range of disciplines, as well as practitioners in health, education, social work and youth work.